michelle is feeling much better but she ask me to add some back ground on here so every one know
i well start with just some of the big things she has
LSE ver of Lupus
Fibromyalgia
Raynaud's syndrom
Acute tachycardia
Costochondritis
over last week a new test for narcolepsy was done so well see how that comes out to be ... i just think from every thing she has her body just cant keep up and wants to sleep
this list gos on but there is no need to add every thing as there smaller things
at this time she is on 19 def, meds and there is really nothing we can do and just try to keep her happy and feeling good
she is in and out of the ER some times 1 or 10 times a month
michelle has ask that no one feel sorry for her and that is not what she wants but to just let every one know that pain is just a part of her life and she well live a long life they say just not how every one else can
my friend here has to dogs that love to cuddle and help her when i am out side working in the RV
i really hope soon i can make it to a RV show and every one can meet us and see the RV
the RV is a very big tool for her and i am trying hard to get it ready for them bad days ...
how well it help some may ask
bathroom is 4 feet from the bed
food is 8 feet from the bed
doctors are 20 feet away if i ever have to drive her there they can walk inside and see her if that ever has to come to be
i know every one loves how open we are about are story and as long as the trolls dont come to play we have alot of plans to make alot of videos on the road
pic of Michelle is doing the sleep testing
one thing we like to do to help keep track of dates and times of going to the ER is i take one pic with the phone every time so one day i well make a video of this not to be sad or any thing but to add it to her lupus page to help any one else with lupus under stand that its going to be about of there life
there is alot of mess under standing with lupus out there and many feel its nothing big ...
but like any one with lupus you can spend weeks months stuck in bed and weeks and months walking about like nothing ever happen and this is where the mess under standing comes from ... when you see some one with lupus its all ways going to be on one of there good days ? in less you live with them