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Old 09-07-2008, 11:21 AM   #15
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Peabody - thank you! And a belated welcome to iRV2.com!
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Old 09-07-2008, 04:57 PM   #16
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OUCH on the burning off --- have not had that done. Will take you up on trading "war stories" if we ever are close. Can tell you some amusing things about my "docs" -- I use the plural as one does the MOHs procedures and the other one does the "lesser" procedures. We'll just have to send Karen shopping while we chat.

Take care and travel safe !!!!
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Old 09-09-2008, 05:21 PM   #17
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So - I'm packing to move back into my RV and the phone rings. It's the VA reminding me of my surgery appointment for tomorrow. I just HAD surgery last Thursday - surely they had to be mistaken? Nope. They just dropped the ball. The path reports on the surgery they did last week were bad - that's all they would say - "bad" - and I was scheduled for surgery tomorrow. NEWS TO ME!! And - the surgery for my face - the one that was to be done by a doc at CU - OCTOBER 27TH!! Sorry - this lady is hitting the road October 1. I'm going to call the VA in Albuquerque or Phoenix or somewhere down there and see if they can schedule me in late October or early November. But here we go again . . .
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Old 09-10-2008, 05:10 PM   #18
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BUMMER on the path report -- was hoping that it would come back clean. I just got the results of my surgery from last week -- all of the radial areas where they cut at came back clean (whew ) -- you know what I mean when I say "I hold my breath each time." Don't let them get you down -- I hate the cutting and sewing but, the alternative is not that good either. Here's hoping that the future ones are easy to get rid of -- keeping you in my prayers -- keep the chin up !!!!
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Old 09-10-2008, 10:25 PM   #19
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Well, the chin is up. I lay awake worrying all night last night, went without food until my appt. at the VA to have the surgery. Got there to check in and got a funny look from the receptionist. She told me to wait just a second and some young guy came to get me and we went back into the surgery room. I was holding my breath, ready for the worst . . . and he just had me sit down in a chair and left the room. Then my doctor came in, gave me a funny look and said, "What are you doing here?" I told him the VA had called me and told me that my path reports were bad and I needed more surgery and go be there TODAY. His face turned red, he left the room, and then you could hear VERY loud conversations down the hall. He came back in a few minutes and told me that my path reports were bad - from the biopsies they did on August 22nd - that they had removed the bad tissue on September 4th - and that it was a mix-up having me come in today. I was LIVID. Somehow, they had gotten the last number of my social security number wrong and the guy that called me didn't even pay attention to the fact that the person with the wrong last digit WAS A GUY and not a woman. DUH!! I am relieved but still very upset at the incompetence. The VA only uses the last four digits of your social security number - so I bet I'm not the only mistake that's been made . . .

And David - congrats on the clean report. Let's hope that's it for BOTH of us for a while!
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Old 09-11-2008, 05:59 AM   #20
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That is so scary they can make a mistake like that,but thank God they caught it.I know you are angry now but please don't dwell on it,you need to have a good attitude to fight cancer of any kind.You need to be laughing and enjoying the good things in life.Continue with your travel plans and put this experience behind you.Big Virtual Hugs and Healing Vibes coming your way,are you ready here they come
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Old 09-11-2008, 07:21 AM   #21
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GRACIESMOM WHEN WE GO FULL TIMING I ALSO WILL NEED TO KEEP TRACK OF ALL THAT THE VA DOES SO HOW DO YOU WORK IT JUST CALL A VA CENTER AND TELL THEM WHERE YOU ARE OR WILL BE AND HOPE THAT THEY SCHED AROUND THAT OR JUST RETURN TO YOUR HOME CENTER EVERY SO OFTEN
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Old 09-11-2008, 09:52 AM   #22
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I'm glad for you that it was just a mix up; however there was no excuse for such a thing to happen. I don't blame you for being livid. I would've demanded to talk to the person that placed that irresponsible call, given them a piece of my mind & then proceeded to rip into everyone up the chain of command until I got to the top. Once you're finished celebrating, I hope you take the time to let those that mislead you know just how their careless actions impacted you.

As a cancer survivor myself, I know the anxiety & concern that accompanies a suspicious test result or a vague/misunderstood message left on my answering machine. We truely have to be our own advocate since no one else is watching out for us.

Best wishes for good health & happy travels from now on!

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Old 09-11-2008, 07:46 PM   #23
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1. Peabody - THANK YOU!! Big Hug!!

2. Chuck - it ain't that easy. If you're not going to be at your home base VA at least once a year, you have to register at each VA you will be seen by - which means you lose your place at your home base VA and you will have to re-register when you go back there - so you lose your primary care physician. There's not national coverage. You can and will be seen at ANY VA for an emergency, and if you register you will be assigned a primary care physician who can refer you to speciality clinics. But if you do not see your primary care physician at least once a year . . . then it's starting over each new place. . . with a new doctor. I have prescriptions mailed to my mail forwarding address. Thank goodness they're coming out with the ID cards so all they have to do is swipe your card and all your medical information is on there. That will save a lot of hassle in the future.

3. Thanks Lori - unfortunately, it's the VA and I can't yell too loudly for fear of being reprimanded or possibly losing privileges!! I made my displeasure known though.

And last but not least - the CIVILIAN surgeon's office that's going to do the MOH's procedure on my eye called today and they had a cancellation for MONDAY!!! Whoopee!! So I will have it all done and taken care of before I leave!! THAT is good news!!

I have to give Kudo's to the women's clinic here at the VA - they are the BEST!! Actually, the little satellite office in Aurora is like going to a regular doctor's office. I MUCH prefer it to the big VA hospital.
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Old 09-13-2008, 02:08 PM   #24
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I am very glad for you that the "bad" report was a fubar -- hate that you went through the sleepless night. I do know the feeling --- have had those sleepless nights also. Hope that the surgeon that is doing the MOH's procedure is a good one. If they know what they are doing --- the result is barely visible after all is done.

Will keep my fingers crossed for you during this trying time ---- get it all and get clean like I am for the moment --- mine just keep "poping" up all the time. Clean now -- until the next time.

Let us hear the outcome of the MOH's ---- I know it will come out well (big wink of encouragement).
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Old 09-14-2008, 12:28 PM   #25
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Dave -

If you are having them mainly on your face, there's a "chemotherapy" product that they are going to give me after this surgery - I will put it on my face for three weeks every year. It will prevent dormant skin cancers from growing. It makes your skin really red for the three weeks, but they say it erases every kind of discoloration on your face, and even helps with wrinkles! ( A GOOD THING!! ) I'm certainly going to give it a shot. You may want to check with your doctor about it. If he doesn't know what I'm talking about, I'll get the name of it for you when I go back in for my checkup on September 18th.

Thanks for the encouragement - it's great to know someone that's in the same boat!!
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Old 09-14-2008, 05:35 PM   #26
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I will check with them this week -- I have an appointment on Wednesday to get the stitches/staples removed from my shoulder. I am getting them on the face and upper body (shoulders mainly). I am sure it is from my lifeguarding days. I will ask them about the treatment you mentioned -- a little redness (or a lot for that matter) does not bother me -- is much better than cutting me up bit by bit.
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Old 09-15-2008, 03:14 PM   #27
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When I was being treated for prostate cancer, I had to go in for a bone scan. They prepped me and ran the test, asking me to wait to make sure the X-rays were readable. After about 1/2 hour the nurse came in and said they needed to look at an anomaly.

Now, I have a pretty good idea what that means. With trepidation, I returned to table for more juice. I asked what the problem was and she said there was a bad looking bone deformity near the top of my spine.

I then recalled that I had broken my neck about 30+ years earlier. That took some of the dire expression from her face and when they redid the scan, they agreed that it was the likely cause.

Whew. I dam near cried.
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Old 09-15-2008, 06:15 PM   #28
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Geez Hamguy - that had to be ONE SCARY EXPERIENCE!

Well Dave - I went in to have that little MOH's procedure done on that little skin cancer under my eye . . . .6 hours and 5 MOH's cuttings later, I have a huge swollen black eye that I can't open and a HUGE incision. It was small on the outside, BIG on the inside. I can't see how it will EVER look normal again right now. But I'm not going to worry about it. I have 20 Vicodin and I'm going to take them until the pain goes away and I'll worry about it then.
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