Go Back   iRV2 Forums > iRV2.com COMMUNITY FORUMS > Just Conversation
Click Here to Login
Join iRV2 Today

Mission Statement: Supporting thoughtful exchange of knowledge, values and experience among RV enthusiasts.
Reply
  This discussion is proudly sponsored by:
Please support our sponsors and let them know you heard about their products on iRV2
 
Thread Tools Search this Thread Display Modes
 
Old 08-16-2015, 02:01 PM   #1
Senior Member
 
Mr_D's Avatar
 
Solo Rvers Club
iRV2 No Limits Club
Join Date: May 2011
Location: Vancouver, WA
Posts: 28,535
I hate liver cancer!

Wife was diagnosed with Hepatocellular Carcinoma‎ or liver cancer in June. Just had her first chemoembolization Friday before last and we're waiting for the results of a CT scan they did 6 hours after the treatment.
At present we don't have any idea how many times they can do the chemo or even what more they can do.
She's been sick for over three years and we thought it was getting better as she hadn't vomited blood for over two years. So we traded our '02 Dutch Star in on the Magna, which promptly blew the engine after only 2,600 miles. There's a thread on it in the Cummins forum, in fact there are several that others posted too.
Anyway the treatment consisted of passing a catheter through an incision in her groin up to the liver, injecting the chemo and then a sticky substance to cut off the blood supply. There is also a second tumor with more "shadows" showing. They were not able to do anything with the second tumor other than try to shut off the blood flow.
Survival rates at 5 years are 2% if nothing done, 50% doing the chemoembolization and 70% if they can do a transplant.
And there in lies a problem, only 5% of those with this cancer get one in time.
Just getting the bills now and not even all of them we're at $76,100! Luckily we went on Cobra and have Medicare as well but that's still costing us over $1,600 month.
I'm sure there are others out there with similar stories! Sorry but I need to vent some!
__________________

__________________
2009 45' Magna 630 w/Cummins ISX 650 HP/1950 Lbs Ft
Charter Good Sam Lifetime Member, FMCA, SKP
RV'ing since 1957, NRA Benefactor Life, towing '14 CR-V
Mr_D is offline   Reply With Quote
Join the #1 RV Forum Today - It's Totally Free!

iRV2.com RV Community - Are you about to start a new improvement on your RV or need some help with some maintenance? Do you need advice on what products to buy? Or maybe you can give others some advice? No matter where you fit in you'll find that iRV2 is a great community to join. Best of all it's totally FREE!

You are currently viewing our boards as a guest so you have limited access to our community. Please take the time to register and you will gain a lot of great new features including; the ability to participate in discussions, network with other RV owners, see fewer ads, upload photographs, create an RV blog, send private messages and so much, much more!

Old 08-16-2015, 02:21 PM   #2
Just south of Twin Cities
 
Cooperhawk's Avatar


 
Winnebago Owners Club
Freightliner Owners Club
Join Date: Jun 2013
Location: 5 miles south of Lakeville, Mn
Posts: 1,590
I feel your pain. I lost my only brother to that damn cancer twelve years ago.

You are fortunate in the fact that many new treatments have come on line since then. At that time a liver transplant was out of the question and all they could do was chemo which made his life unbearable for six weeks, and then he felt better for a couple months, then do it all again.

There are new treatments coming all the time now. Have hope.
__________________

__________________
Retired FAA ATC,
VFW AL, VVA, NRA
2002 Journey DL 36, 3126 Cat 330hp
2015 Ford Explorer Blue Ox tow bar, AF1
Cooperhawk is offline   Reply With Quote
Old 08-16-2015, 03:53 PM   #3
Senior Member
 
Deny's Avatar
 
Winnebago Owners Club
Join Date: Feb 2014
Posts: 833
So Sorry to hear that your wife is ill.

Hopefully, a good break will come your way.
__________________
Deny is offline   Reply With Quote
Old 08-16-2015, 04:06 PM   #4
Senior Member
 
spinn's Avatar
 
Join Date: Oct 2012
Location: Houston, TX, 77069
Posts: 2,087
Vent all you want personally, I HATE CANCER. We have had a run of it in our family over the past years, from our 4 year old grandson to my mom. Some made it (grandson, wife, me), some didn't, dad, mom and most recently my brother in law.

Keep the faith, yell loud that we all HATE CANCER!.

Don't forget to check out some of the support forums, they can be a wealth of information.

Praying for your wife.
Steve
__________________
Steve Pinn
2008 Newmar Essex-4514
2014 Ram Laramie ecodiesel
spinn is offline   Reply With Quote
Old 08-16-2015, 04:15 PM   #5
Senior Member
 
Join Date: Nov 2013
Posts: 188
You need to really study the transplant programs - My wifes brother went through this two years ago - Seems every progam is different but the sicker the patient the higher the priority on the list. He is doing well now after the transplant. Also you can be on more than one list. - As a rare cancer survivor myself I was given only a small chance to live five years by an "expert" I quickly found another "expert" and that was 10 years ago - Keep fighting and use cncer support groups.
__________________
Melvo
08 Trail-Lite 8230
2011 Silverado 1500
Melvo is offline   Reply With Quote
Old 08-16-2015, 04:38 PM   #6
Senior Member
 
LynnD's Avatar


 
Winnebago Owners Club
Join Date: Jul 2015
Location: Johnstown PA
Posts: 502
I'm so sorry to hear about Mrs. D and am keeping you both in our thoughts and prayers.
__________________
Lynn & Andy Dudish
2005 Winnebago Adventurer
Kar Kaddy with VW Eos
On the Road with 8 cats and a lovebird!
LynnD is offline   Reply With Quote
Old 08-16-2015, 04:45 PM   #7
srh
Senior Member
 
srh's Avatar
 
Monaco Owners Club
Join Date: Feb 2012
Posts: 1,120
Mr_D: So sorry to hear about your wife. Praying for here speedy recovery!

Steve P: Sorry to hear about your family's encounter with C! You will be in our thoughts and prayers too!
__________________
srh
2008 Signature
srh is offline   Reply With Quote
Old 08-16-2015, 05:59 PM   #8
Senior Member
 
Mr_D's Avatar
 
Solo Rvers Club
iRV2 No Limits Club
Join Date: May 2011
Location: Vancouver, WA
Posts: 28,535
We tried to get on OHSU's transplant list in Portland OR since we live abput 15 miles away. Seems our insurance won't work with OHSU so the next closest is Seattle and it's 160+ miles. DW was refusing to consider it up till today. If she makes it on the list and gets to the top we'd have to take the MH up there and live. There is a $10,000 mileage/living allowance though plus most of the test's she already had done will transfer. Guess she's going to call tomorrow and get the ball rolling for Seattle.
The chemoembolization that they did is one of the newer treatments. The problem is that there is already another tumor showing and more "shadows". Dr says it's like playing "whack a mole", you get one tumor and then another pops up. At some point there isn't going to be enough liver left to keep her alive.
__________________
2009 45' Magna 630 w/Cummins ISX 650 HP/1950 Lbs Ft
Charter Good Sam Lifetime Member, FMCA, SKP
RV'ing since 1957, NRA Benefactor Life, towing '14 CR-V
Mr_D is offline   Reply With Quote
Old 08-16-2015, 07:55 PM   #9
Senior Member
 
NorthernDriv's Avatar
 
Join Date: Mar 2014
Location: Mission,B.C.
Posts: 238
I HATE CANCER!!!!!!
We're with you.
__________________
HR Endeavor DST Bath and 1/2 - SOLD
Me and the DW
NorthernDriv is offline   Reply With Quote
Old 08-17-2015, 09:59 AM   #10
Senior Member/RVM #90
 
MSHappyCampers's Avatar


 
Monaco Owners Club
Join Date: Nov 2002
Location: Columbus, MS
Posts: 26,358
Quote:
Originally Posted by Mr_D View Post
Wife was diagnosed with Hepatocellular Carcinoma‎ or liver cancer in June. Just had her first chemoembolization Friday before last and we're waiting for the results of a CT scan they did 6 hours after the treatment.
At present we don't have any idea how many times they can do the chemo or even what more they can do.
She's been sick for over three years and we thought it was getting better as she hadn't vomited blood for over two years. So we traded our '02 Dutch Star in on the Magna, which promptly blew the engine after only 2,600 miles. There's a thread on it in the Cummins forum, in fact there are several that others posted too.
Anyway the treatment consisted of passing a catheter through an incision in her groin up to the liver, injecting the chemo and then a sticky substance to cut off the blood supply. There is also a second tumor with more "shadows" showing. They were not able to do anything with the second tumor other than try to shut off the blood flow.
Survival rates at 5 years are 2% if nothing done, 50% doing the chemoembolization and 70% if they can do a transplant.
And there in lies a problem, only 5% of those with this cancer get one in time.
Just getting the bills now and not even all of them we're at $76,100! Luckily we went on Cobra and have Medicare as well but that's still costing us over $1,600 month.
I'm sure there are others out there with similar stories! Sorry but I need to vent some!

So sorry to hear of your challenges! Thank you for sharing this with us. We will be praying for her! Remember, God is still in control!
__________________
Joe & Annette

2002 Monaco Windsor 40PBT, 2013 Honda CRV AWD
MSHappyCampers is offline   Reply With Quote
Old 08-17-2015, 11:57 AM   #11
Senior Member
 
Join Date: May 2014
Posts: 2,796
Sorry to hear this, your Wife and you will be in our prayers, that God gives her a speedy recovery and supports you through this.
__________________
Mike & Charlotte
2014 Newmar Canyon Star 3610
Orange County, California
Mike and Cha is offline   Reply With Quote
Old 08-17-2015, 12:11 PM   #12
Senior Member
 
bulldog2's Avatar
 
Join Date: Apr 2014
Posts: 260
prayers going out to you both ,been there ..they found my wifes when she had 4 months left ,she made it for 3 more ,now i am raising my grandsons ,and yes venting is a good thing ,used to go out late at night ,to find a big field ,and just scream ,helped a little ,dont try to keep it in
__________________
bulldog2 is offline   Reply With Quote
Old 08-17-2015, 12:53 PM   #13
Community Administrator
 
NLOVNIT's Avatar


 
Pond Piggies Club
Fleetwood Owners Club
Ford Super Duty Owner
LA Gulf Coast Campers
Outdoors RV Owners Club
Join Date: Mar 2002
Posts: 22,324
Blog Entries: 1
Prayers to you both.

Lori-
__________________
Lori & Dave - FMA #3415 | FMCA #F419886 | RV/MH Hall of Fame Lifetime Member
2006 Fleetwood Bounder 36Z & 2014 Honda CRV EX-L AWD, My iRV2 Photo Albums
How is it one careless match can start a forest fire but it takes a whole box to start a campfire?
NLOVNIT is offline   Reply With Quote
Old 08-17-2015, 06:31 PM   #14
Senior Member
 
Mr_D's Avatar
 
Solo Rvers Club
iRV2 No Limits Club
Join Date: May 2011
Location: Vancouver, WA
Posts: 28,535
Quote:
Originally Posted by bulldog2 View Post
prayers going out to you both ,been there ..they found my wifes when she had 4 months left ,she made it for 3 more ,now i am raising my grandsons ,and yes venting is a good thing ,used to go out late at night ,to find a big field ,and just scream ,helped a little ,dont try to keep it in
I'm afraid that that's about where she is with the months left. I hope I'm wrong though.
Her mother also had liver cancer and lasted 3 months.
__________________

__________________
2009 45' Magna 630 w/Cummins ISX 650 HP/1950 Lbs Ft
Charter Good Sam Lifetime Member, FMCA, SKP
RV'ing since 1957, NRA Benefactor Life, towing '14 CR-V
Mr_D is offline   Reply With Quote
Reply



Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Love and Hate Frameless Windows Toad Haul iRV2.com General Discussion 23 04-07-2015 08:58 PM
Cancer Society Survivor's Walk. I have "BEEN" Volunteered. jimtoo Just Conversation 4 05-04-2014 08:53 AM

» Virginia Campgrounds

Reviews provided by


Copyright 2002- Social Knowledge, LLC All Rights Reserved.

All times are GMT -6. The time now is 12:13 AM.


Powered by vBulletin® Version 3.8.8 Beta 1
Copyright ©2000 - 2017, vBulletin Solutions, Inc.