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Old 08-19-2016, 08:37 AM   #155
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I am so, so sorry. Peace and comfort to both of you.
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Old 08-19-2016, 09:13 AM   #156
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Praying hard! Don't give up hope!
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Old 08-19-2016, 09:31 AM   #157
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I pray for you both Mr. D. While things look impossible, God will get you through this.
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Old 08-19-2016, 09:37 AM   #158
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Keeping you both in my thoughts.. I had planned on seeing you both on the road at some point...

still hoping that might pan out.. best wishes.
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Old 08-19-2016, 09:39 AM   #159
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Quote:
Originally Posted by Mr_D View Post
They have pretty much decided it's a very rare complication where the liver is trying to reject the new host body. The reverse of the normal rejection. Will now get the bone marrow team in on her case since the see it more often. Rash over a lot of her body, even inside her mouth. Did an EEG today but no result back yet.
I have this! Graft vs host disease. Let me know if you want to speak on phone or via private email. I have some ideas and tons of experience.

NHL 2012, allo SCT 11/2012, GvHD 5/2013-present
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Old 08-19-2016, 03:32 PM   #160
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Prayers are outbound. ......
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Old 08-19-2016, 09:52 PM   #161
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Mr D, so sorry to hear about the setback. We will continue our prayers for the both of you. Hang in there and know that God is in control, and he is hearing all the prayers for you.
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Old 08-19-2016, 09:52 PM   #162
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We can't begin to know what you are going through. But know that there are a bunch of us on iRV2 pulling and praying for you and your wife.


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Old 08-20-2016, 05:12 AM   #163
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Continued thoughts and prayers.
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Old 08-20-2016, 05:30 AM   #164
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Too Sad, Sorry Mr. D let her know were pulling for her.
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Old 08-20-2016, 12:34 PM   #165
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You and your family are in our prayers.
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Old 08-20-2016, 12:50 PM   #166
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So very sorry to hear this. My heart goes out to you. Will keep you both in our thoughts
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Old 08-22-2016, 01:11 PM   #167
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Thinking of you guys daily, hoping that they get her GVHD under control quickly. Sending strength to you both, and angels in the form of nurses, doctors, and hospital staff.
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Old 08-22-2016, 01:24 PM   #168
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Unhappy Final update

She passed away on Sunday Aug 21st at 2:30 PM. I was there when she took her final breath. Seems like something in her lungs ruptured and she coughed up blood. It was time, she had struggled long enough and couldn't defeat the disease.
Thank you everyone.
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