My wife and I had our second child on 11/19. He was immediately rushed to the ICU for pulmonary hypertension, then transferred to a children's hospital. The ventilator was not able to provide enough support and they were forced to do a very invasive ECMO bypass treatment (thank the lord we were at one of the few facilities that had this available) which takes the blood out, oxygenates it and pumps it back in, giving his poor little lungs and heart a rest. He was on that for 6 days then they decided to put him back on a ventilator. The good news is, he did very well once off the ECMO. A bit over a week later, he's doing well with minimal ventilator support.
They've determined that his diaphragm is weak. They tried to extubate, but he was not yet strong enough to carry the burden on his own, so he was reintubated. The thought/hope is that his diaphragm is able to strengthen on its own and he'll be able to go to a CPAP machine (like those used for sleep apnea patients) within coming weeks.
To further complicate issues, an MRI revealed unilateral polymicrogyria - a relatively rare brain anomaly. In short, the neuron transfer that usually takes place during gestation did not happen quite right on the left side of his brain. This could lead to some developmental delays and/or complications on the right side of his body. At this point, there's no signs of anything amiss (apart from the breathing issues, obviously) and the neurologist said an infant brain is very powerful and "wiring" around issues is possible. Fortunately, this was discovered early so they/we can work with him through development to stimulate the impacted areas.
Ironically, we named him Diesel James which has now proven to be a suiting name. The doctors and nurses all think its the perfect name for him - he's strong and has fought the odds several times already.
He's doing well at this point (all things considered) - apart from withdraws from the morphine, versed, etc... (my poor baby boy is an addict at a couple weeks old) - but alert, moves his hands, arms, legs, tracks visually, etc.
We remain optimistic and hopeful for a full recovery, even if there are challenges along the way, but I'd really appreciate any positive thoughts and/or prayers you could send his way.
As an aside... we live a reasonable distance from the children's hospital, so we are and will be in our coach for the next month or so. It's been in the low 20's and so far so good. The hydro-hot is a real lifesaver!
Thank you all for your thoughts; they're truly appreciated.