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Old 03-07-2018, 09:25 AM   #29
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Please know I'm not trying to minimize "your" pain and if this isn't applicable just ignore. Maybe it will help someone that looks at this thread.

I've had fairly minor back surgery and started to think injections were going to be needed every couple of months for the rest of my life.
I found my answer in this book. Since stretching multiple times a day and adding a little core work I haven't had a back flare up (pinched nerve) this year. I even added a little bit of tennis. The key areas that need stretching are hamstrings and hip flexors.
https://www.amazon.com/7-Minute-Back...+pain+solution
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Old 03-07-2018, 10:34 AM   #30
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That is one of the reasons I use the mail order company that I listed. They test for all contaminates including Salmonella.
I missed the name of that company. Would you post a link, please.
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Old 03-07-2018, 10:56 AM   #31
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I have an appt for a pain management evaluation on May 21st in Edmonds, WA near my daughter's place. I have 19.25 Fentanyl patches left. That's just enough to keep me comfortable if I stay on 3/4 of a patch. I hope I can wean down to half a patch, but time will tell.

Kratom? I'll try it some night after Sena is asleep. Living with an uncaged monkey requires having a clear head. Once she goes to sleep I'll have 12 hours to experiment. I'd like to have a non prescription back up.
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Old 03-07-2018, 11:23 AM   #32
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My wife has been under the care of a Pain Management Clinic for over 10 years. She was doing okay on a regiment of Opana ER and Opana IR...but of course, those got caught up in the Opioid issues and the FDA pulled their certifications. They have tried other medications with limited success: she does not metabolize any of the other meds well. Right now she is on a dosage that is almost 50% more than she was one.

She is going to try an implantable device: the trial is for 7 days and the unit is worn on a belt while the leads are temporary inserted into the spine around the T-6 region. If this works, then she is going in for an implanted unit along with permanent leads. The unit is recharged by a wireless charger.

Precision Spinal Cord Stimulator (SCS) System - How it Works - www.controlyourpain.com

Hope this works: she has been to Rush and Northwestern in Chicago, Mayo in Minnesota, and every top rated specialist that I could find. You might look into this: from what I have read {mostly thru the Boston Scientific web site}, for those that it works on, it works well. I hope she is one of those.

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Old 03-07-2018, 11:51 AM   #33
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I missed the name of that company. Would you post a link, please.
Buy Kratom Extract & Powder Online | FREE SHIPPING | Kraken Kratom

No financial interest. There are others but I have used this company and they seem to be good. On my last order, they had limited credit card orders to American Express only. You can do E-checks too. It could be that coupon or discount prices will not apply if a Visa or Mastercard is used.

If you do gain some experience, please post the results (good or bad). You find very little information on senior citizen use for pain. I have only been using it for a short time and keeping the volume on the low side. I am cautious and generally conservative and never use anything illegal.. except some pot after I retired for pain. Every job I ever held required unannounced drug testing as a condition of employment and I always remained responsible with any substances that could affect clear thinking.

Here is a fairly unbiased user's guide: The Kratom User's Guide

Also Web MD has a fairly unbiased report on Kratom.
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Old 03-07-2018, 12:51 PM   #34
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Surgery is not an option for me due to my AFib.
Sorry to hear about your pain suffering. I am also a Afib sufferer. I first experienced the symptoms 28 years ago. I have been in chronic lone atrial fibrillation for almost 15 years. I have been on warfarin since my Afib went chronic. However, I have had several surgeries, neck, back, and shoulder, without complications. While there is an increased risk for stroke, my cardiologist said the risk was minimal.
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Old 03-07-2018, 12:58 PM   #35
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Originally Posted by bowser4x4 View Post
My wife has been under the care of a Pain Management Clinic for over 10 years. She was doing okay on a regiment of Opana ER and Opana IR...but of course, those got caught up in the Opioid issues and the FDA pulled their certifications. They have tried other medications with limited success: she does not metabolize any of the other meds well. Right now she is on a dosage that is almost 50% more than she was one.

She is going to try an implantable device: the trial is for 7 days and the unit is worn on a belt while the leads are temporary inserted into the spine around the T-6 region. If this works, then she is going in for an implanted unit along with permanent leads. The unit is recharged by a wireless charger.

Precision Spinal Cord Stimulator (SCS) System - How it Works - www.controlyourpain.com

Hope this works: she has been to Rush and Northwestern in Chicago, Mayo in Minnesota, and every top rated specialist that I could find. You might look into this: from what I have read {mostly thru the Boston Scientific web site}, for those that it works on, it works well. I hope she is one of those.

Bowser
Please keep us informed about your wife's trial. I had an implanted stimulator placed in 2009. The trial was successful but the stimulator was a disaster. It was implanted by an anesthesiologist, not a neurosurgeon and I believe I was his first patient. He botched it and my pain more than tripled.

It was really awkward to use. I had to lay on a 4” disk for hours to recharge it. The control device was huge compared to a smartphone. It wouldn’t fit in my pocket. I had to change the settings every time I changed positions - sitting, standing, laying on my back, laying on my side all required different settings. If I turned over while sleeping it woke me up. I forgot to take the control to the dentist and spent an hour vibrating wildly while getting my teeth cleaned.

The final straw was that if it ever became fully discharged surgery was required to change the battery. After having it removed my Fentanyl patch need went from 100 mcg to 37 mcg within 2 weeks. I've since weaned down to about 20 mcg.

I would suggest that you make sure the surgeon implanting the permanent device is highly experienced.
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Old 03-07-2018, 01:10 PM   #36
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Many people have suggested marijuana, but keeping a clear brain is vital for me. Even in the early 70s I didn’t enjoy smoking it, but would get a nice contact high.
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Old 03-07-2018, 01:11 PM   #37
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Originally Posted by okmunky View Post
Please keep us informed about your wife's trial. I had an implanted stimulator placed in 2009. The trial was successful but the stimulator was a disaster. It was implanted by an anesthesiologist, not a neurosurgeon and I believe I was his first patient. He botched it and my pain more than tripled.

It was really awkward to use. I had to lay on a 4” disk for hours to recharge it. The control device was huge compared to a smartphone. It wouldn’t fit in my pocket. I had to change the settings every time I changed positions - sitting, standing, laying on my back, laying on my side all required different settings. If I turned over while sleeping it woke me up. I forgot to take the control to the dentist and spent an hour vibrating wildly while getting my teeth cleaned.

The final straw was that if it ever became fully discharged surgery was required to change the battery. After having it removed my Fentanyl patch need went from 100 mcg to 37 mcg within 2 weeks. I've since weaned down to about 20 mcg.

I would suggest that you make sure the surgeon implanting the permanent device is highly experienced.
Believe me, I have checked both the unit and the surgeon out every way I could think of. The new unit does not have to set differently when moving or changing positions and only takes 20 minutes to charge. The charger is about the size of a computer mouse. They had one that I examined... I did ask him about how many he has done, and he was very open: been doing this type unit for 3 years and has done over 150 implants. His biggest concern is was that during the downtime after the permanent surgery, that she be very careful until the scar tissue sets the leads in place. According to the doctor, that is the only time he has had one go bad...the patient was out doing things too early and the leads drifted.

Will keep you up to date. Waiting on the insurance company now... ugh.

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Old 03-07-2018, 01:13 PM   #38
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This is just disgusting! People who need the drug for valid, supported, well documented medical reasons can't get this stuff, but if you go on the street you can probably buy it by the boatload. This is what happens when the government gets into it and tries to control a problem with one solution that is addressed to the 1% who abuse the stuff and screw all the rest who need it. If they abuse it and die, maybe we just improved the gene pool. Harsh, but the present solutions only hurt those who are doing everything right.
Hmm... sorry not buying it. Please ask yourself this question - who made all of drugs that are available on the street? Turns out, it was the pharmaceutical companies themselves quite often https://www.washingtonpost.com/news/...=.e3422210b0af The people to blame here are the pharmaceutical companies. Their greed has created a crisis. The government has had to step in here because the body count has become too large.
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Old 03-07-2018, 01:39 PM   #39
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Hmm... sorry not buying it. Please ask yourself this question - who made all of drugs that are available on the street? Turns out, it was the pharmaceutical companies themselves quite often https://www.washingtonpost.com/news/...=.e3422210b0af The people to blame here are the pharmaceutical companies. Their greed has created a crisis. The government has had to step in here because the body count has become too large.
But the problem is that there are people who did need particular drugs that were decertified by the FDA. My wife was on one and while it did not stop the pain, she was able to function day to day. Her Pain Management group did their job: 30 day scripts, she had to go once a month for evaluations and drug testing for other drugs. Under these conditions, she was able to have a fairly good quality of life. But since the certification for her drugs were pulled, she has to take different ones that she does not metabolize well-> resulting in a 50% increase in the amount of Opioid's that she has to take and gets much less relief. Not saying the drug companies are perfect, but someone is prescribing the drugs that are getting onto the open market. And as a country, we do not have a great track record of stopping anything from coming across our borders: so as soon as we stop them here, China will start making them and people will start to smuggle those as well.

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Old 03-07-2018, 01:47 PM   #40
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It was so easy for my body to become dependent on Fentanyl. I know to change my patch when I get a creepy feeling that means I am going into withdrawal. If I was suddenly cut off I'm not sure what I would do.

I somwhat blame doctors for over prescribing addictive drugs. There are now opiates combined with opiate antagonists mixed in that will keep them from causing a high.
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Old 03-07-2018, 07:32 PM   #41
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I'm so sorry you're dealing with this.
I have osteoarthritis in both knees and I too take a pain med daily.
I completely understand what you mean about how hard it is to get pain medication anymore and how you are treated like a criminal for trying to get what you need just to get through the day.
I have to go in to see the doctor every 3 months and I'm drug tested to make sure I'm not taking anything I shouldn't and that the level of med in my system is what it's suppose to be and not more. Then the looks you get at the pharmacy when getting your medication filled and GOD FORBID you're going out of town so you try to get it early. Then you REALLY get the looks because it's too early to fill. Can't get it filled till it's been exactly 30 days.
The only thing the war on opioids has done is making it harder for people in chronic pain to get the medication they need to make their life livable.
And it is only getting more unbelievable and worse with a recent article I read that told the story of people actually HURTING THEIR PETS to get pain medication!!!! Can you freaking believe that??!!
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Old 03-07-2018, 09:31 PM   #42
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My wife has been under the care of a Pain Management Clinic for over 10 years. She was doing okay on a regiment of Opana ER and Opana IR...but of course, those got caught up in the Opioid issues and the FDA pulled their certifications. They have tried other medications with limited success: she does not metabolize any of the other meds well. Right now she is on a dosage that is almost 50% more than she was one.

She is going to try an implantable device: the trial is for 7 days and the unit is worn on a belt while the leads are temporary inserted into the spine around the T-6 region. If this works, then she is going in for an implanted unit along with permanent leads. The unit is recharged by a wireless charger.

Precision Spinal Cord Stimulator (SCS) System - How it Works - www.controlyourpain.com

Hope this works: she has been to Rush and Northwestern in Chicago, Mayo in Minnesota, and every top rated specialist that I could find. You might look into this: from what I have read {mostly thru the Boston Scientific web site}, for those that it works on, it works well. I hope she is one of those.

Bowser

I'm going to be asking about that at my next appointment next Wed......hoping it is available for other areas of the back besides lower as I am one of the oddball upper back pain sufferers made worse by allowing a fusion to C5-6 in my neck with a titanium plate and four screws with an illiac bone crest (bone taken from my hip as they say the body takes to its own better than cadaver bone).
My neck gets hot as blazes at times but rarely hurts while the tingling sensation has never reacted to anything from radial frequency ablation, one steroid injection I would NEVER choose to repeat, Norco, as many as 3 morphine 10mg over the course of 3 hours (although while trying to see if I could house clean for a living), to 2-3 packets of BC Powders until I asked to try LYRICA which my PM doc I had just started going to said yes to with a side of Morphine 10 and Percocet 10-325 for the break through pain.
FINALLY!!!
But as I said in my former post, I don't know how I am going to be able to "full-time" RV when I will have to return to my home state EVERY single month to check in and say everything is doing fine and still working and pick up the next months prescription a few hours later.
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