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01-24-2020, 12:28 PM
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#84183
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Senior Member
Join Date: Jun 2012
Location: Champaign Co. IL
Posts: 713
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Quote:
Originally Posted by Diwizi
Cord that was replaced Attachment 273119
Thus us between his body and controller. Very important. |
Di, that's the sort of nick that one of our cats has made in usb charging cords. We now use super tough braided ones.
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Champaign County Illinois
2016 Thor Tuscany 45 AT, 2014 Jeep Cherokee
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01-24-2020, 12:50 PM
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#84184
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RVM 18
Solo Rvers Club iRV2 No Limits Club
Join Date: Feb 2011
Location: Yuma County, AZ
Posts: 10,830
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Oops Bob and Dennis are both listed as RVM#176. Which is correct?
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Barb (RVM18) with Morkies Lily & Bebe RIP Sena FMCA#F466348
"Homer" ‘11 Shasta Cynara, pulling "Ranger" '97 Ford Ranger toad
The Journey is Our Destination. Full-timer May 2011 - July 2021
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01-24-2020, 12:58 PM
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#84185
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Senior Member
Join Date: Sep 2011
Location: Florida
Posts: 4,815
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Quote:
Originally Posted by okmunky
Oops Bob and Dennis are both listed as RVM#176. Which is correct?
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I have Bob as 186 in my book.... 176 is eezMoose
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Diane & Larry, (RVM64) our Westies LitaBit & QTπ (Diwizi)retired educator,watercolor artist / (Zeelarry)ARMY ret 2023 Thor Vegas 24.1
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01-24-2020, 03:20 PM
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#84186
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Senior Member
Fleetwood Owners Club
Join Date: Dec 2012
Location: Arkansas
Posts: 11,950
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Di as a honorary member of Fl Electrical Union (FlEU) I was just wondering was this cord replaced by a card carrying electrician? 
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Tim & Mary Discovery 40X. Jeep GCL RVM32
"I've been lost now, days uncounted..."GFR"
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01-24-2020, 03:40 PM
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#84187
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Senior Member
Join Date: Sep 2011
Location: Florida
Posts: 4,815
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Quote:
Originally Posted by huntnski
Di as a honorary member of Fl Electrical Union (FlEU) I was just wondering was this cord replaced by a card carrying electrician? |
Betten that... 2 RN that are highest level lvad certified, and closely watched by me....
Mostly he feels good...
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Diane & Larry, (RVM64) our Westies LitaBit & QTπ (Diwizi)retired educator,watercolor artist / (Zeelarry)ARMY ret 2023 Thor Vegas 24.1
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01-24-2020, 06:21 PM
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#84188
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Senior Member
Join Date: May 2017
Location: Vancouver Wash
Posts: 7,230
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Thanks....changed it...
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01-24-2020, 07:01 PM
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#84189
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Senior Member
Join Date: Jul 2012
Location: Fulltime, USA
Posts: 16,706
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FLASHBACK
Okay RVMs, who put this hand print on the window screen in my RV?
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01-24-2020, 09:13 PM
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#84190
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Senior Member
Fleetwood Owners Club
Join Date: Dec 2012
Location: Arkansas
Posts: 11,950
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Don't know nutten bout no hand print. Do know about a monkey over your shower and a guy that cleaned your windshield once?
__________________
Tim & Mary Discovery 40X. Jeep GCL RVM32
"I've been lost now, days uncounted..."GFR"
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01-25-2020, 09:27 AM
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#84191
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Senior Member
Join Date: Sep 2011
Location: Florida
Posts: 4,815
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Quote:
Originally Posted by MartinC
Di, that's the sort of nick that one of our cats has made in usb charging cords. We now use super tough braided ones.
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Martin..... that would be great idea..... but this is a specific cord to the pump.... between his skin driveline entry and his control module....
The team didnt even have one in clinic, had to run over to the OR suite to get one...
He has rescue tape just above the connection to his body, but to replace that is another surgery....
Just another one of the things we deal with every day...
Many still dont realize that he has a cord entering into his belly that goes to his heart...... this photo was from last summer infection, normally there is very little drainage...
yesterday had a great conversation with 8yp grandson... he got a rc boat and we were discussing how water and electricity dont mix.... teaching moment about why Larry cannot get into water...
__________________
Diane & Larry, (RVM64) our Westies LitaBit & QTπ (Diwizi)retired educator,watercolor artist / (Zeelarry)ARMY ret 2023 Thor Vegas 24.1
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01-25-2020, 05:54 PM
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#84192
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RVM 18
Solo Rvers Club iRV2 No Limits Club
Join Date: Feb 2011
Location: Yuma County, AZ
Posts: 10,830
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I'm just glad that because of all his high tech gadgetry he's still walking amongst us. I realize that there must be constant stress associated with it, but you seem to be handling it with grace.
I just wished they made something similar that was Sena sized. Her congestive heart failure is a roller coaster ride. When she will take her meds she is her typical bratty self. Without them it’s a nightmare. If only I could get her to understand that they make her feel and breathe better.
Knock on wood - for now she is cooperating. Like Mary Poppins sang - "Just a spoon full of sugar helps the medicine go down." It’s not the best choice for a diabetic, but it is the lesser of the evils. I tried all the low calorie sweetners but she knew the difference.
__________________
Barb (RVM18) with Morkies Lily & Bebe RIP Sena FMCA#F466348
"Homer" ‘11 Shasta Cynara, pulling "Ranger" '97 Ford Ranger toad
The Journey is Our Destination. Full-timer May 2011 - July 2021
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01-25-2020, 08:01 PM
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#84193
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Senior Member
Join Date: Sep 2011
Location: Florida
Posts: 4,815
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Quote:
Originally Posted by okmunky
I'm just glad that because of all his high tech gadgetry he's still walking amongst us. I realize that there must be constant stress associated with it, but you seem to be handling it with grace.
I just wished they made something similar that was Sena sized. Her congestive heart failure is a roller coaster ride. When she will take her meds she is her typical bratty self. Without them it’s a nightmare. If only I could get her to understand that they make her feel and breathe better.
Knock on wood - for now she is cooperating. Like Mary Poppins sang - "Just a spoon full of sugar helps the medicine go down." It’s not the best choice for a diabetic, but it is the lesser of the evils. I tried all the low calorie sweetners but she knew the difference.
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Yep.... we concentrate on coumadin diet first, then diabetes....
__________________
Diane & Larry, (RVM64) our Westies LitaBit & QTπ (Diwizi)retired educator,watercolor artist / (Zeelarry)ARMY ret 2023 Thor Vegas 24.1
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01-26-2020, 01:22 AM
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#84194
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Senior Member
Join Date: Jun 2012
Location: IL
Posts: 6,250
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Is it any wonder Di & Larry stay close to their LVAD team? Di gets help asap & Larry gets to carry on being his usual bratty self. Wait, wait! Is that Sena? Oops! All y'all deal w/ so much it makes my head swim!
DGD Lucy in England just had a massive seizure the other night, after having been under pretty good control for months. Ambulance w/ lights flashing, EMT working on her all the way, & they actually almost lost her this time. Poor kid has been through so much in her life!
The child of a friend of theirs has up to 300 seizures a day. That's not a typo ... 300! The only medicine that can reduce that number is cannabis. Very difficult to get in England & very expensive, it costs them around $3,000 every month. My stepdaughter is having her hair cut for a cancer wig soon & is using that to crowd-fund help for this little girl. I'm not fundraising here, but if you would like to help, get in touch w/ me privately.
Must be late. Love you all! Goin ta bed!
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Suspinz: Dabbler in Many Things
'16 Thor Tuscany 45 AT & '14 Jeep Cherokee; 2 bikes, 1 kayak, 1 walking stick. Feline furfaces Betsy & Tikka. Yes, the journey IS the destination!
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01-26-2020, 07:51 AM
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#84195
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Senior Member
Join Date: Sep 2011
Location: Florida
Posts: 4,815
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Quote:
Originally Posted by Suspinz
Is it any wonder Di & Larry stay close to their LVAD team? Di gets help asap & Larry gets to carry on being his usual bratty self. Wait, wait! Is that Sena? Oops! All y'all deal w/ so much it makes my head swim!
DGD Lucy in England just had a massive seizure the other night, after having been under pretty good control for months. Ambulance w/ lights flashing, EMT working on her all the way, & they actually almost lost her this time. Poor kid has been through so much in her life!
The child of a friend of theirs has up to 300 seizures a day. That's not a typo ... 300! The only medicine that can reduce that number is cannabis. Very difficult to get in England & very expensive, it costs them around $3,000 every month. My stepdaughter is having her hair cut for a cancer wig soon & is using that to crowd-fund help for this little girl. I'm not fundraising here, but if you would like to help, get in touch w/ me privately.
Must be late. Love you all! Goin ta bed!
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Oh Sue and Martin, prayers for all....
__________________
Diane & Larry, (RVM64) our Westies LitaBit & QTπ (Diwizi)retired educator,watercolor artist / (Zeelarry)ARMY ret 2023 Thor Vegas 24.1
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01-26-2020, 08:09 AM
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#84196
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RVM 18
Solo Rvers Club iRV2 No Limits Club
Join Date: Feb 2011
Location: Yuma County, AZ
Posts: 10,830
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OMG! That's a seizure every 5 minutes or less. I had a foster daughter who would have 25-30 a day when she first moved in. Thankfully a change in meds brought that down to 3-4 a day. That was exhausting! I had her from 1990-2000 and another little girl from 1992-2000. Using canabis or CBD wasn’t known back then. Both girls have now passed, thankfully not on my watch. I had to give them up because my back got so bad from lifting and carrying them at 65 and 76#. That was the toughest and most rewarding job I’ve had.
__________________
Barb (RVM18) with Morkies Lily & Bebe RIP Sena FMCA#F466348
"Homer" ‘11 Shasta Cynara, pulling "Ranger" '97 Ford Ranger toad
The Journey is Our Destination. Full-timer May 2011 - July 2021
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