Community Forums

fansill · 07-21-2014, 08:19 PM

Hey All,

Hubby has spent 8 weeks in re-hab/nursing home recovering from a complete shoulder replacement. While he was there, his nurses and therapists noticed some symptoms that concerned them. They made an appointment with a neurologist and hubby was diagnosed with Parkinson's.

As some of you know, there is no definitive test to guarantee a firm case of Parkinson's but he has been on a new med for 2 weeks and it has relieved many of the Parkinson's symptoms so it seems to be that he indeed has the affliction.

I am reeling and dealing with this diagnosis and trying to plan our future but would really welcome any and all advice and suggestions. He is going to be released from the nursing home in a week and we are going to spend the rest of the summer and fall in a lovely, small campground at the beach. Our stick and brick home is not set up for his recovery as it is a two story home and he is not ready to do a lot of stairs right now. The RV is a lovely alternative and will allow him to hopefully gain strength and relax in a smaller home (40 foot small...LOL) and all on one level. I am really scared...no...I am terrified about taking care of him 24/7. I am hoping that the Parkinson's meds will continue to improve and abate his symptoms but if any of you have any advice...please send me some good news or helpful hints.

I drive the RV while "dragging" the CRV behind us and the two pups and I want to make his life wonderful for as long as we can.... Hopefully we can travel to places in the South when the weather here in the Northeast gets frigid but I will take this whole thing a day at a time.

Thanks for your friendship and all you have done for me in the past. You are all my support and I hope to be able to get strength and hope from you all.

God Bless you all....

Faith

djbmsu · 07-21-2014, 08:27 PM

I would like to think, that the Good Lord will never hand us anything that we cannot over come. You both will move forward with this temporary inconvienence, one day at a time.

Fred1609 · 07-21-2014, 08:34 PM

Faith...our friend was diagnosed some time ago with Parkinsons. The progression of her Parkinsons was slow and helped with medication. There will be time for you to find out more about treatment and living with this. Michael J Fox was diagnosed in 1991 with Parkinson's and he is still a functioning person. You and Bob will have lots of time to sit down and talk about the future. Be strong, look forward and enjoy each other.

GlenB · 07-21-2014, 08:37 PM

We will honor your request with prayers to a good God who blesses us with His grace, power and will. Keep us posted...GlenB

MartySQ · 07-21-2014, 09:57 PM

Thinking of you and yours... keep us posted how life goes.

NorthernDriv · 07-21-2014, 10:12 PM

Thats the way! You guys have a positive plan, with a positive attitude......You are already on your way to Happiness!!! So many moments left to share with each other. I feel you will care for him with such care and loving as not to notice your fears. Time will carry on as you will, and create loving memories.
Fresh breezes and a following sea....

PyrateSilly · 07-22-2014, 06:36 AM

Thom's dad was diagnosed with it a lot of years ago. Really the only difference is he is slower because of not wanting to shake. She does most of the driving now even back and forth to their snow-birding from MI to FL and back again. He doesn't really do any less than before, some things just may take a little longer.
He still does a garden in MI, still takes his walks, still watches the grandkids alone sometimes.